Direito e proteção social pública: a doença renal crônica (DRC) e as implicações no adoecimento e sociabilidade das crianças e adolescentes e suas famílias: hospital das Clínicas da UFG/Goiânia/GO, 2008 a 2010

Abstract

This dissertation aims to grasp the implications of the process of illness on the social life of the families with children and adolescents with Chronic Kidney Disease, who undergo treatment at the Serviço de Nefropediatria do Hospital das Clínicas da UFG, by identifying the tensions and conflicts arising from the process of treatment, based on the set of relations and patterns of sociability that the family builds on the different phases of the illness: coping with the diagnosis and treatment and the search for complex health public services that the disease requires. To accomplish this aim, the role of the state is recognized as a legitimate body responsible for public assistance and social protection of citizens who need it. The concept of social policy is used based on the positive conception of rights and the operating conditions for the realization of the rights provided for in legal frameworks as: LOS / SUS (1990), ITS (2004), LOAS (1993) and ACE (1990), especially with respect to social rights guarantee. It is understood that this embodiment is carried out by the implementation of public social policies that derive from relations both of antagonism and reciprocity established between State and society. The public social protection, regarded as a right of all citizens, and as a duty and responsibility of the State, by means of implementation of public policies, is seen as provider of the rights secured in the 1988 Constitution, in a social rights perspective. The analysis of these conditions is focused on the overcoming of the causes of the situations to which significant portion of the population is subjected, because of the Brazilian economic policy that has generated economic discrepancies neo-liberal, privatizing capitalism. This study also outlines as the analysis background the Brazilian paradox experienced in the field of public social protection, i.e.: on the one hand, public protection is ensured by the Constitution of 1988, seen as the Citizen Constitution. On the other, it is denied by the neoliberal offensive rebound to social rights and public policy. This study intends to contribute to a better understanding of the impact of the lack of intersectoral cooperation between the public policies, so that families and professionals may engage in a political battle to guarantee a public service of quality that meets the demands of the users of the public health service. The principle of family matriciality is considered in the context of the implementation of SUAS/2005. This study contradicts the neoliberal rhetoric of social provision that tries to transfer to the society/family the State responsibility for the caring of its members through private social provision.