SOBREVIVER AO ACIDENTE VASCULAR CEREBRAL: PERSPECTIVAS DOS SOBREVIVENTES E SEUS CUIDADORES FAMILIARES.

Abstract

People who survive stroke face a complex recovery, involving biomedical, social and psychological aspects to health and quality of life. Currently, there is a scientific and multidisciplinary debate about the progress needed to promote health and quality of life of people who survive stroke, through health care models that use a comprehensive approach to health, with emphasis on process rehabilitation. The aim of the study was to describe the experience of illness and rehabilitation process experienced by people who survived the stroke and their family caregivers, the hospital environment to the home. This is a survey of the type of qualitative case study, which was attended by 16 survivors and 16 family caregivers, in a general hospital in the city of Goiania, from January 2012 to July 2013. The data were collected through semi-structured interviews at the homes and the interpretative analysis was conducted through the reduction steps, data organization, identification of meaning units, construction of the central themes and interpretation of results. The perception of the health condition after strok was described as a change in the ability to perform activities of daily life and family dynamics. Faith in God is essential to cope with the changes. The formal care to health experienced by the user and family caregivers presented difficulties in the process of rehabilitation, monitoring and maintenance of drug treatment after hospital discharge. These difficulties represented an abrupt distortion between the ideal employee for public policies and the actual neglect of the poor service that contributes to the dehumanization of health care. Subjects and their families were left without support network for the treatment and continuity of care. It was evident the disarticulation of the organizational structure of health care networks and their unpreparedness to meet the demands of health care to patients with chronic diseases. The knowledge gaps related to the disease have been described by all participants. These results suggest the need to improve the strategies of educational interventions and multidisciplinary care, as well as review the health self-management process and strengthen social support network, especially the family who will face the care demands imposed by stroke .